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Harold, These are excellent questions, that many of us probably have, and I am not aware of any global solution to this issue. One partial approach is to de-identify the data, to allow considering future uses as non human subjects research. De-identifying ...

Lindsay -- Thanks! Although "moderate" might be more accurate! William -- While the extract will have a research ID and obfuscated dates, it will have notes that will have attempted to be deidentified, but we assume that no large collection of free text ...

Dear Harold, I am a faculty member who does research on these large extracts. I can describe what happened to me (data consumer) with our IRB at the University of Kentucky. This was back in 2012 or so when I was the first one on campus to make a ...

Hi Will, Great to hear from you. This is a discussion that would be good to have with members. You would be a great person to sift out research data vs EHR data as it evolves... J Thanks for sharing! Lindsey ------Original ...

It sounds like this approach could address one (or a small number of) use case(s) well. Having one technology / use case doesn't seem like a robust approach, but any substantive opportunity to make progress in interoperability should ...